Cystic Fibrosis (CF) is a life-threatening disease that affects over 30,000 Americans. Great strides have been made in treatment, but there is still no cure. Life expectancy (with early diagnosis and proper treatment) has grown from a few years to to an average of 35 to 40 years in just the last 30+ years.
The salt air along the coast has been proven to help cystic fibrosis patients, and is why we chose the name Salt Air Jam.
Proceeds from the first Salt Air Jam will be used to make a donation to the Cystic Fibrosis Foundation earmarking funds to be distributed the CF Center at MUSC.
In January 2013 the FDA approved the first (of it’s kind) drug to reverse the effects of CF in patients with a specific CF gene. This was a remarkable step that is hoped to lead to the same or similar treatments for patients with other CF genetics.
Eli Gilder was diagnosed with CF at birth and at the time of the inaugural Salt Air Jam is 5 years old. Eli is responding well to his CF treatment. He is doing a great job as our Salt Air® Scramble & Jam spokesperson and enjoys the job!